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Leadership Education in Neurodevelopmental Disabilities
(Va-LEND)

Overview

This advanced level training and leadership development program targets health professionals in 14 disciplines. The goals include the development of advanced clinical skills and leadership abilities in childhood neurodevelopmental disabilities. The program is a collaboration among the Partnership for People with Disabilities, the VCU School of Medicine, Department of Pediatrics, and the Virginia Department of Health, Title V Program. (Funded by the Maternal and Child Health Bureau, U. S. Department of Health and Human Services.)

Major Activities

  • Implement and evaluate a 12-credit competency-based curriculum for health professionals and special educators
  • Evaluate and enhance the family mentorship experience
  • Recruit advanced graduate students and professionals to be VA-LEND trainees and fellows
  • Coordinate training activities related to childhood neurodevelopmental disabilities with the VCU School of Medicine, and the Virginia Department of Health, Title V Program
  • Implement and evaluate interdisciplinary clinics at a local public health center, a community-based human service agency, and a university-based clinic

Resources:

Engaging Health Professionals and Families in Evidence-based Research

Learning Module for Trainees and Clinicians:

The purpose of this interactive learning module is to provide an overview of basic research information, discuss benefits and barriers to research and provide resources for discussion with families and patients. This module is designed for training with LEND and UCEDD trainees, health professional students, educators, and interested clinicians. It was developed through grant T21 MC08050 from the Maternal and Child Health Bureau, Health Resources and Services Administration.
Learning Module and Video

Video for Families/Parents, Trainees and Clinicians:

The purpose of this video is to promote awareness of participation in research projects and to encourage families to seek information about research findings and research participation. This 19 minute video is designed for families/parents considering research or seeking evidence-based care, trainees, educators, and clinicians working with families, and family support or advocacy groups. It was developed through grant T21 MC08050 from the Maternal and Child Health Bureau, Health Resources and Services Administration.
Learning Video Only:
(High-Bandwidth: Cable or better)
(Low-Bandwidth: Dial-up)

Genetics Online Learning Modules
In order to provide children, adults, and families with information about their health it is important for all health care providers to have an appreciation for the role of family health history in health and disease, to have knowledge of credible resources related to family health history, and to know when to make a referral to a geneticist or genetic counselor. Under a LEND Genetics grant from AUCD, the VA-LEND has created a three-part series of free online learning modules to increase the understanding of family health history of health care professionals from a variety of disciplines, provide educational resources on genetics and newborn screening, and give examples of cases where genetics referrals can make a difference in the lives of children and their families. All modules are interactive with three cases in which the learner reaches different outcomes based on their decision path.
http://www.aucd.org/template/news.cfm?news_id=3434&id=17

Contact

Janet Willis at (804) 828-0073, jwillis@vcu.edu

Web Address: http://www.vcu.edu/partnership/va_lend/

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VCU

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Partnership for People with Disabilities
PO Box 843020, Richmond, Virginia 23284
(804) 828-3876

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